Thursday, February 11, 2016

Warmed Heart Week 12

Kindness and compassion are not two words that I generally think of when dealing with big government bureaucracies.


However.

In the quest to find relief from this unending pain my medical team unearthed a drug that might actually help.

Unfortunately that drug is not yet available in the US.

I talked to a wonderful man named Jim at the FDA.

He listened to me, including crying, for a long phone call...

...Immediately contacted the drug company.

...Gave them a heartfelt plea for a compassionate release of enough meds to conduct a clinical trial of one...that would be me.

Alas, the drug company does not have enough of the medicine manufactured...

And the FDA has classified said medicine as an "Orphan"...

However...

Jim was incredibly supportive...

Offered to stay in touch with the manufacturer to see if anything changes...

And actually apologized profusely for not being able to generate a better result.

I was impressed.

And touched.

And the whole interaction really warmed my heart.

 

This post is linked to Warm Heart Wednesday #12. For other heart warming links click here.




Wednesday, February 10, 2016

Warm Heart Wednesday Week 13

Week 13
 
It occurred to me the other day that sometimes I am stuck in the bad...not seeing or recognizing the good as often as I should.
 
I allow myself to be filled with weight and worry and woes.
 
Not always.
 
But sometimes too often.
 
I forget to remember the wonderful small, positive things that happen each week...a card in the mail, someone holding a store door or asking where I get my hair cut, a funny little story, or a ray of sunshine warming my face.
 
Warm Heart Wednesday is for me.   To start remembering.  And to make a journal of joy.
 
I hope you will consider joining me on this adventure by sharing something that made YOUR heart warm over the past week.  I think it will be fun and uplifting to read your ongoing journals as well.
 
 
Warm Heart Wednesday #12 for the week of January 31 through February 6.
 
I am loving visiting these links.   It is so wonderful to take a few moments to breathe and read happy thoughts!   Thank you, thank you.   Last week I found myself thinking of moments that I might write about!   This is going to be soooo good for me! 
 
And...
 
Please remember, I'm working the kinks out of this.
 
If you have any questions about Warm Heart Wednesday or problems doing your link just post it in a comment or send me an e-mail. I'll do my best to help you as quickly as I can.

The McLinkey will be live from 1:00 pm MST time Wednesday afternoon.

And remember.... link back to this post, you need to be registered as a follower of my blog, PG posts only, and you must visit at least 10 other posts...perhaps consider starting from the last posts and work backwards. The links will stay live after the final post deadline has passed so you can even wait and visit over the weekend or whenever you have more time.


Wednesday, February 3, 2016

Warm Heart Wednesday Week 12

Week 12
 
It occurred to me the other day that sometimes I am stuck in the bad...not seeing or recognizing the good as often as I should.
 
I allow myself to be filled with weight and worry and woes.
 
Not always.
 
But sometimes too often.
 
I forget to remember the wonderful small, positive things that happen each week...a card in the mail, someone holding a store door or asking where I get my hair cut, a funny little story, or a ray of sunshine warming my face.
 
Warm Heart Wednesday is for me.   To start remembering.  And to make a journal of joy.
 
I hope you will consider joining me on this adventure by sharing something that made YOUR heart warm over the past week.  I think it will be fun and uplifting to read your ongoing journals as well.
 
 
Warm Heart Wednesday #12 for the week of January 24 through January 30.
 
I am loving visiting these links.   It is so wonderful to take a few moments to breathe and read happy thoughts!   Thank you, thank you.   Last week I found myself thinking of moments that I might write about!   This is going to be soooo good for me! 
 
And...
 
Please remember, I'm working the kinks out of this.
 
If you have any questions about Warm Heart Wednesday or problems doing your link just post it in a comment or send me an e-mail. I'll do my best to help you as quickly as I can.

The McLinkey will be live from 1:00 pm MST time Wednesday afternoon.

And remember.... link back to this post, you need to be registered as a follower of my blog, PG posts only, and you must visit at least 10 other posts...perhaps consider starting from the last posts and work backwards. The links will stay live after the final post deadline has passed so you can even wait and visit over the weekend or whenever you have more time.


Warmed Heart Week 11

We have been loving our Grandlittles back from Ireland, but now that we live 100 miles North of them we don't see them as much.  
 
However.
 
I did make it to a basketball game for the oldest girl.
 
My face hurt from smiling through the game.
 
When she came up to me afterwards I got her picture...
 
...and captured a perfect, perfect 'Graaaaandma...' moment.

 
Ahhhh.   It's so wonderful she is  living close enough now that I can annoy her by taking her picture.
 
PS.   She is thirteen now and towers over me! 


 

This post is linked to Warm Heart Wednesday #11. For other heart warming links click here.




Wednesday, January 27, 2016

Warm Heart Wednesday Week 11

 Week 11!
 

It occurred to me the other day that sometimes I am stuck in the bad...not seeing or recognizing the good as often as I should.
 
I allow myself to be filled with weight and worry and woes.
 
Not always.
 
But sometimes too often.
 
I forget to remember the wonderful small, positive things that happen each week...a card in the mail, someone holding a store door or asking where I get my hair cut, a funny little story, or a ray of sunshine warming my face.
 
Warm Heart Wednesday is for me.   To start remembering.  And to make a journal of joy.
 
I hope you will consider joining me on this adventure by sharing something that made YOUR heart warm over the past week.  I think it will be fun and uplifting to read your ongoing journals as well.
 
 
Warm Heart Wednesday #11 for the week of January 17 through January 23.
 
I am loving visiting these links.   It is so wonderful to take a few moments to breathe and read happy thoughts!   Thank you, thank you.   Last week I found myself thinking of moments that I might write about!   This is going to be soooo good for me! 
 
And...
 
Please remember, I'm working the kinks out of this.
 
If you have any questions about Warm Heart Wednesday or problems doing your link just post it in a comment or send me an e-mail. I'll do my best to help you as quickly as I can.

The McLinkey will be live from 1:00 pm MST time Wednesday afternoon.

And remember.... link back to this post, you need to be registered as a follower of my blog, PG posts only, and you must visit at least 10 other posts...perhaps consider starting from the last posts and work backwards. The links will stay live after the final post deadline has passed so you can even wait and visit over the weekend or whenever you have more time.


Warm Heart Week 10


 I. WENT. SLED RIDING!
 
Pain pills are a wonderful thing!
 
Still smiling over my cold weather heart-warming experience.

 

This post is linked to Warm Heart Wednesday #10 for week beginning December 27.  For other heart warming links, please click here.





Wednesday, January 20, 2016

Warm Hearted Week 9


It was one of those 'weepy' weeks.
 
You know the kind?
 
Where the second a Hallmark commercial comes on you close your eyes, put your fingers in your ears and sing "la, la, la".
 
Two of our Grandlittles were up over the weekend.
 
When it was time for them to go home I got teary.
 
Sniff.
 
Sniff.
 
The middle one shouted, 'Grandma!   Grandma!   Look at this!"
 
And I turned to see her smiling face...
 
 
(oops.   Sorry it's sideways!   You'll have to turn your head!)
 
 
...upside down.
 
It dried my tears.
 
Made me laugh.
 
And definitely warmed my heart.
 

This post is linked to Warm Heart Wednesday #9 for week beginning December 20.  For other heart warming links, please click here.